CHD Awareness Week

CONGENITAL HEART DEFECT AWARENESS WEEK

So, did you know that February 7-14th was congenital heart defect awareness week? Me either....until now.  It's one of those things that you have no clue about until it affects your directly!  Now it is such a huge consuming part of my life.  I came across a website/resource for families/general public about CHDs called It's my heart.  It's amazing the amount of knowledge that is out there, yet the dire need for funding.  Did you know....

• Congenital Heart Defects are the #1 birth defect worldwide
• Congenital Heart Defects are the #1 cause of birth defect related deaths worldwide
• About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect in the United States (approx. 40,000/year)
• Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for Congenital Heart Defects
• Each year worldwide 100,000 babies (under one year old) will not live to celebrate their first birthday
• Each year in the United States approximately 4,000 babies (under one year old) will not live to celebrate their first birthday
• The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year
• Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research
• The American Heart Association directs only $0.30 of every dollar donated toward research. The remainder goes toward administration, education and fundraising efforts. Of the $0.30 that goes toward research only $0.01 goes toward pediatric cardiology for CHD
• Though research is ongoing, at least 35 defects have now been identified
• Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood
• It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications

This website provides information as well as ways you can help.  If you feel inclined, please take a moment to look over it!