Monday, February 25, 2013

Valentine's Day 2013

I've never been big on the idea of Valentine's Day.  No real reason...just never really been in to celebrating it.  Maybe it's because I'm still recovering from all the Christmas celebration.  Whatever the reason, just never a huge holiday in my household.  

This year however...things were a little different.  I see Valentine's through a different light now...I will never look at a heart in the same way again.  Every time I see a heart now I think of my sweet girls and how they have stolen my heart (Matt too of course...love you ;).  Anyhow, if there was ever a day to celebrate what we have been given it's Valentine's Day.  

Kate was all on board with this idea.  Abby slept through most of our party, but she was most certainly the guest of honor.  We woke up to heart brownies for breakfast on a heart tablecloth with stuff to make Valentines all around us.  Pink, red, and purple balloons littered the playroom and red sparkly hearts hung from the doorway.  What a fun day indeed.  I was woken up with a dozen beautiful hot pink roses and a box of chocolates.  What a sweet hubby I have!

We spent the day pretty much doing whatever Kate wanted.  This means that by the end of the day my house along with all three of us were covered with pink glitter, stickers, and hearts.  

Like I said, I will never look at a heart in the same way again.  I see hearts in everything, and they remind me of my sweet Abby...they always will! What a perfect holiday for her.
I had big plans for an adorable picture in their matching outfits...this was the best I could get! :)


After all, I guess Valentine's day is a day to celebrate love.  My love for these two sweet girls just consumes me sometimes.  It's almost too much to take, and it brings me to tears.  

It seems these days, that a lot of things bring me to tears...anger, grief, jealousy, love.  I cry because I'm angry that this had to happen to my sweet girl.  That she has to go through the surgeries, the pokes, the prods. It's the cliche, "It's not fair!" You know what...it's not fair though. It makes me MAD...the kind of mad where all I can see is red. The kind of mad that makes you want to scream at the top of your lungs! It makes me angry that Abby will be "used" to taking meds, going to see the doctor, and going to the hospital.  I would rather have to drag her kicking and screaming like a child that doesn't know this reality.  It makes me angry for Kate, that she will also know the reality of having a "sick" sister...that she will have to go see her in the hospital after her surgery, and know that kids actually do get sick.

I cry out of grief for the way I thought things would be.  Every now again I allow myself to mourn the fact that our life will never be "normal." We always have to think ahead, and plan around doctor visits, medication times, and "viral seasons."  Now I know many of you will say that I should be thankful that I have my sweet girl to worry about, and I am.  I thank God numerous times a day for keeping her here with us.  I don't know what I would do without her, and I would take this life with meds, surgeries, doctor appointments if given the choice as opposed to a life without her anyday.  However, I am allowed to feel this feelings, and work through the curve ball we have been thrown.

I cry out of jealousy...sometimes I envy other families with their children.  I envy the fact that they never have to think that they may live a day without their child.  Yes...sometimes that thought crosses my mind, and it absolutely terrifies me! They walk around completely sheltered from these thoughts.  I hope and pray that I never have to be without either of my sweet girls.

I cry about all of these things because of LOVE.  I love these girls so much that I only want the best for them.  I only want them to know no pain, never have to get stuck by a needle, have heart surgery, stay in the hospital, have their heart broken, or even a splinter for that matter.  I love them with every ounce of my being...I've never known a love like this before.  So while I work through all of these emotions (which I know will take awhile), I choose to focus on love.  I choose to focus on what we have been given to get me through those hard and dark times, and sometimes have brownies for breakfast! 

So while life may not "be fair"...it's ok because it's all WORTH IT!

Wherever You Are My Love Will Find You
By: Nancy Tillman

I wanted you more than you will ever know;
so I sent love to follow wherever you go.

It's high as you wish it. It's quick as an elf.
You'll never outgrow it...it stretches itself.

So climb any mountain...
climb up to the sky!
My love will find you.
My love can fly!

Make a big splash! Go out on a limb!
My love will find you. My love can swim!

It never gets lost, never fades, never ends...
if you're working...
or playing...
or sitting with friends.

You can dance til you're dizzy...
paint til you're blue...
There's no place, not one,
that my love can't find you.

And if someday you're lonely,
or someday you're sad,
or you strike out at baseball,
or think you've been bad...

just lift up your face, feel the wind in your hair.
That's me, my sweet baby, my love is right there.

In the green of the grass...in the smell of the sea...
in the clouds floating by...at the top of a tree...
in the sound the crickets make at the end of the day...

"You are loved. You are loved.  You are loved," They all say.  

My love is so high, and so wide and so deep, it's always right there, even when you're asleep.  

So hold your head high, and don't be afraid to march to the front of your own parade.  

If you're still my small babe or you're all the way grown, my promise to you is you're never alone.  

You're my angel, my darling, my star...and my love will find you, wherever you are!

Thursday, February 14, 2013

Abby Reese 4 Months!

This little sweet thing is 4 MONTHS OLD!



Weight: 13 lbs. 2.8 ounces (44th percentile
Length: 24.25 inches (55.96th percentile)

My Oh My how she has grown!

Can you believe it?!?! I know I can't! What an adventure it has been, and what joy she has brought to our lives.  We can not imagine our lives before her or without her! She is such an amazing baby.    The girl never cries...and I mean never.  A little fussy here and there when she's hungry, but that's really all. She usually wakes up anywhere between 7-8 and is ready to play.  Abby will play on her play mat while Kate eats breakfast.  Then we play with Abby and take her medicine.  We usually go to the playroom as Abby is mesmerized by everything Kate does, frankly so am I sometimes ;).  Abby then takes a little nap in the morning, and wakes up about the time Kate goes down for her nap.  Mommy and Abby then get to spend some quality time.  She has yet to take a nap in her crib.... I'm a firm believer that babies are made to be held.  They are created to need YOU! Therefore she's held...don't judge! :)
The afternoon consists of more of the same.  Playing and staring at these two beautiful girls that I have been blessed with (sometimes I'm more "blessed" than others) haha.  At night, she likes to be cuddled, loved, and fed until it's time to go sleep.  She loves and I mean LOVES her bath.  The bathroom is so wet when she's finished.  She smiles and giggles and kicks kicks kicks.  We love watching her! There's nothing better that a freshly bathed baby.  I could just eat her up! She usually goes down somewhere between 8-9 and will sleep anywhere from 6-10 hours.  Daddy brought up moving her back up to her room...I'm just not ready for that yet.  She'll be a big girl soon enough! 


Heart walk for Abby

This past weekend (February 9th), we did the It's my heart, heart walk for this little princess!


We had such a great time! It amazed me how many people were there, and are affected by CHD.  I had mixed feeling when we arrived.  It was hard realizing that we were now one of "those" families.  I don't mean that in a bad way at all.  It was just that now we had a "cause" to walk for.  We've done numerous walks before, but never with a purpose other than to beat our previous time :).  

Looking around you see how many people CHD (congenital heart defects) affects.  Who knew there was such a large population.  Even though it made me sad at times, it also overwhelmed me with all the support.  Every family had T-shirts with their person on it! The love that was there was amazing!  We saw many people who had taken care of Abby as well as friends from the hospital.  It was encouraging to see all these kids with heart defects keeping up with our energetic Kate! Next year we plan on getting a team together and do some real fundraising.  It was kind of a spur of the moment this this year...fun nonetheless.

Kate had a wonderful time with all the bounce houses.  I think there were about 10 of them! There was music, dancing, everything a girl could want...even Minnie Mouse (who we weren't so sure about).  We took Kate to lunch afterwards to finish off our day! 








Kate relaxing after lunch
On our way there
Hope to see you there next year!


Tuesday, February 12, 2013

CHD Awareness Week

CONGENITAL HEART DEFECT AWARENESS WEEK


So, did you know that February 7-14th was congenital heart defect awareness week? Me either....until now.  It's one of those things that you have no clue about until it affects your directly!  Now it is such a huge consuming part of my life.  I came across a website/resource for families/general public about CHDs called It's my heart.  It's amazing the amount of knowledge that is out there, yet the dire need for funding.  Did you know....

  • Congenital Heart Defects are the #1 birth defect worldwide
  • Congenital Heart Defects are the #1 cause of birth defect related deaths worldwide
  • About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect in the United States (approx. 40,000/year)
  • Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for Congenital Heart Defects
  • Each year worldwide 100,000 babies (under one year old) will not live to celebrate their first birthday
  • Each year in the United States approximately 4,000 babies (under one year old) will not live to celebrate their first birthday
  • The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year
  • Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research
  • The American Heart Association directs only $0.30 of every dollar donated toward research. The remainder goes toward administration, education and fundraising efforts. Of the $0.30 that goes toward research only $0.01 goes toward pediatric cardiology for CHD
  • Though research is ongoing, at least 35 defects have now been identified
  • Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood
  • It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications
This website provides information as well as ways you can help.  If you feel inclined, please take a moment to look over it! 


Sunday, February 3, 2013

Weekend

What a fun weekend! We always look forward to times when we can all be together...doing something FUN! This past weekend I finally got to get my hair done ( which if you know me you know is VERY IMPORTANT).  Matt was wonderful enough to watch the girls all day Saturday so I could have a little time to do some things I needed.  
Sunday consisted of a long day at Memorial Park.  We all slept in until 9:00 which was A-MAZING! Took our time getting ready, and then headed to La Madeline to get some picnic food.  We all sat on a blanket and enjoyed the beautiful weather (Living in Texas has it's perks!).  There is a huge playground which Kate loved.  We then came back and took a family nap! Hope your weekend was as wonderful as ours!

This Little Lady slept for 8 hours! Keep your fingers crossed it happens again tonight!